Yesterday I went to All Children's to see Kyle and I met his new doctor, Dr. Figueroa. Kyle's Echo-Cardiograph the day before had shown that Kyle had calcification on his pulmonary arteries. Pulmonary Artery Calcification is so rare that they have to send Kyle's enzymes overseas to Europe for testing! As soon as I got home, I looked up his condition on Google and the few references that had to do with children, rather than adult dialysis patients, also referenced Twin-to-Twin Transfusion Syndrome (TTTS). The information I found says that the "receipient twin" in TTTS (which was Kyle) may develop this condition because of the overload on their heart in utero. One of the references to this condition mentioned a surgery that was done on one child at 4 months of age that was successful in treating the Pulmonary Artery Calcification so I guess there's at least there's treatment options. The doctor did say that this is a very serious condition, though, especially combined with his lung problems.
On the happier side, while I was there, Kyle was asleep but he lifted his hand with the IV in it up to his mouth and started licking his IV... It was so funny to watch! The nurse tried giving him a pacifier (the smallest pacifier you'll ever see) but he didn't want it. As soon as she took the pacifier away again, Kyle lifted his hand and started licking the IV again!
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