New Doctor

Last Friday evening (9/15), while I was at work, my parents watched Hannah so that Chris could go to All Children's and meet with the new neonatologist, Dr. Wadhawan. Dr. Wadhawan is the same doctor who began the administration of Kyle's steroid treatment back in August (see post: Long Night). He explained that he was not convinced that what Kyle had was the Infantile Arterial Calcification (IAC) and did not feel that there was much point to doing the genetic testing. Chris gave the doctor a print out of the literature I had found online about Pulmonary Artery Calcification (PAC) and its link to Twin-to-Twin Transfusion Syndrome(TTTS) and the doctor said he would look into more information about those cases.

Dr. Wadhawan is more concerned about Kyle's lungs. Kyle has shown great improvement since August but not as much as hoped. He has some scarring on his lungs which may have adverse effects for the rest of his life and as long as he is on the ventilator, he's at risk for even more scarring. Dr. Wadhawan has asked us to consider another course of steroid treatments with Dexamethasone to treat the lung disease.

I feel that this doctor's concerns are more aligned with my own concerns.