Thursday, December 28, 2006
Blessings
We were also able to get our own digital camera so we can stop monopolizing my dad's camera for pictures of Kyle and we found a really good deal on a laptop for me to use updating this blog and later on in school. Thanks to our "Christmas Angel", we still have enough to pay off some debts that were too much for us before. If our "Christmas Angel" is reading this, thank you so very much!
Baby's First Christmas
In the meantime, Kyle is making lots of friends in NICU3. Whenever I visit him, staff and other parents always say how he's always smiling and so friendly. On Christmas day I actually was able to get pictures of his elusive smile. Previously, he would smile lots - until I pulled out the camera. Then his face would go all serious. But he flashed me his smile a couple of times Christmas day!
Here it is...
Christmas Party
Sunday, December 17, 2006
Home for New Year's?
I spoke to Dr. Wadhawan this past week about Kyle's condition. They are going to do a "swallow test" (probably tomorrow) where they essentially do an x-ray while he feeds from a bottle to see what's going on with the feedings and why his respiratory rate goes up when feeding.
Dr. Wadhawan says that depending on the results from the "swallow test", they will start discussing the possibility of a feeding tube being put directly in Kyle's stomach (by surgery). This doesn't sound very pleasant but the doctor says that Kyle would be able to go home with this kind of feeding tube.
I asked the doctor if there was any chance of Kyle being home by Christmas. He said not really but possibly by New Year's! I don't want to get my hopes up too much but fingers and toes are crossed!
The doctor also helped me arrange for us to be able to bring Hannah in long enough for a family picture despite the rule against sibling visitation.
My First Christmas In Heaven
My First Christmas In Heaven
I see the countless Christmas trees around the world below
With tiny lights, like Heaven's stars reflecting on the snow.
The sight is so spectacular, please wipe away the tear
For I am spending Christmas with Jesus Christ this year.
I hear the many Christmas songs that people hold so dear
But the sounds of music can't compare with the Christmas choir up here.
I have no words to tell you, the joy their voices bring
For it is beyond description to hear the angels sing.
I know how much you miss me, I see the pain inside your heart.
But I am not so far away, we really aren't apart.
So be happy for me, dear ones, you know I hold you dear.
And be glad I'm spending Christmas with Jesus Christ this year.
I sent you each a special gift from my heavenly home above.
I sent you each a memory of my undying love.
After all, love is a gift more precious than pure gold.
It was always most important in the stories Jesus told.
Please love and keep each other as my Father said to do.
For I can't count the blessing or love he has for each of you.
So have a Merry Christmas and wipe away that tear.
Remember, I am spending Christmas with Jesus Christ this year.
In loving memory of Eric
Tuesday, December 12, 2006
Christmas Party After All
cordially invite you to our 5th annual
Christmas Jump Start Party!
December 23rd, 2006
4:00pm-10:00pm
For more information (like location), please e-mail me at: coriander_smiyles@yahoo.com
Our usual party rules apply:
- Come at whatever time you want between 4:00-10:00pm
- Stay for however long you want
- Bring a happy heart and some Christmas spirit
- Invitation is open to all
- Feel free to bring any of your friends and family
- Dress however you are comfortable
- Come hungry - We will have food
- No need to RSVP
Roller Coaster Year in Rhyme
A new job – a fresh start.
A month later, Surprise!
In the womb, a small heart.
Spring rolls on in
And Hannah’s no longer 1.
An ultrasound shows
We’ll have double the fun.
As summer moves in,
The belly gets round.
Then our car gets stolen,
But, don’t fret. It was found.
June and July, spent mostly
In hospital beds
Or at home on bed rest
(At times, loopy on meds).
Joy came in July
On the 19th (Wednesday).
First Eric and then Kyle
Came out early to play.
But on Saturday night,
After only three days,
Eric left us for Heaven
With a smile on his face.
Now he watches from Heaven,
No longer in danger,
Held by the Son
Who was born in a manger.
And Kyle lives on,
Though still fragile and small
But a champion fighter,
Surviving it all.
Impending Discharge?
I've learned to accept that Kyle may or may not be home before Christmas.
Friday, December 01, 2006
Out of surgery
Heart Surgery for Kyle
Yet again, I'm writing from the All Children's Hospital family waiting room while Kyle is in an operating room. The cardiologist has decided to do the cardio catheterization with ballooning after all. The cardiologist did inform us that, although this is a pretty standard procedure, it is complicated by the artery calcification because it makes the arteries more rigid and brittle. First, they are testing the pressures and taking pictures of the heart before doing the actual procedure. They are being as cautious as possible but there is still high risk in this procedure. On the positive side, we got to hold him and take pictures of him without even the feeding tube on his face since they had to stop feedings last night to prepare for the procedure today.
I will try to write more later to update you all on how the procedure goes.